Mattie Stepanek
From Wikipedia, the free encyclopedia Mattie J.T. Stepanek Stepanek in June 2004 Born Matthew Joseph Thaddeus StepanekJuly 17, 1990Washington, D.C. Died June 22,... Read more.
Mobility Devices
Muscular dystrophy is a group of genetic conditions characterized by progressive muscle wasting and loss of muscle function. Different muscle types may be affected... Read more.
How to combat social isolation while growing older with muscular dystrophy
Finding ways to stay connected and engaged is essential Written by Patrick Moeschen – April 6, 2026 As I grow older with limb-girdle muscular dystrophy,... Read more.
My emotions blurred as I watched my play from ‘The Other Side’
I want to continue writing stories about rare disease survivors Written by Shalom Lim In my previous column, I shared my experience of stepping away from... Read more.
My willingness to educate others about MD benefits all of us
Written by Patrick Moeschen After my muscular dystrophy diagnosis in August 1985, I thought I could hide my symptoms from my friends at school. When I... Read more.
Life is so much easier with a sense of humor
It’s my way of staying balanced when life tries to tip the scales Written by Patrick Moeschen I’m feeling funny today — humorous, in fact. Brimming... Read more.
Oculopharyngeal Muscular Dystrophy (OPMD)
What is oculopharyngeal muscular dystrophy (OPMD)? OPMD is a rare, slowly progressive myopathy that is characterized by weakness of the eyelids (ocular) and throat... Read more.
Qatar teen with muscular dystrophy breaks down stereotypes, one at a time
by Victoria Scott Nawaal Akram aspires to be the role model she looked for – but didn’t find – as she was growing up in Qatar. The 17-year-old Pakistani... Read more.
Valentine’s Day a Time to Reflect for DMD Patients
By: Alan Hieber, DMD Contributor Valentine’s Day is upon us. While I enjoy the sweet taste of chocolate, there is a slightly bitter feeling I have on this... Read more.
People have told me I’m a strong person, but what is strength?
Written by Patrick Moeschen | 19 January 2026 “I think true strength is persevering through events that are beyond our control” I’d like to share... Read more.