As I get weaker, I’m looking for something to help me regain some independence Written by Robin Stemple | July 1, 2026 If you’ve read my last few columns, you’ll know that I’m struggling […]
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Marc Soriano living with Myasthenia Gravis
From Wikipedia, the free encyclopedia Marc Soriano (7 July 1918 in Cairo – 18 December 1994) was a 20th-century French philosopher. After the death of his father, his family went to Italy. He […]
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In life with FSHD, find as much joy and laughter as you can
Humor won’t change our situation, but it can change our perspective Written by Robin Stemple My facioscapulohumeral muscular dystrophy (FSHD) causes a variety of symptoms that affect every aspect of my life. Sitting […]
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Adults with MD report major gaps in sexual, reproductive healthcare: Study
Strong desire exists for disability-informed guidance from medical teams Written by Steve Bryson, PhD | June 2, 2026 Adults with muscular dystrophy (MD) in the U.S. report widespread gaps in sexual and reproductive healthcare, according […]
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‘Heart-on-a-chip’ project to help researchers study BMD, DMD
Duchenne Parent Project Spain invests in plan to create new lab model Written by Marisa Wexler, MS | May 12, 2026 Duchenne Parent Project Spain is investing €247,000 (just over $290,000 USD) in a […]
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Raul Pizarro
From: Wikipedia, the free encyclopedia One of Raul Pizarro’s art work in 2017 Raul Pizarro Born November 11, 1975 (age 50)Mexicali, Mexico Occupation Visual artist Notable work Greatest Acceptance (2018), Daedalus (2009) Website […]
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Muscular System Facts
Within the realm of human anatomy, the muscular system stands as a testament to the remarkable adaptability and resilience of the human body. While they depend largely on training and protein to […]
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Mattie Stepanek
From Wikipedia, the free encyclopedia Mattie J.T. Stepanek Stepanek in June 2004 Born Matthew Joseph Thaddeus StepanekJuly 17, 1990Washington, D.C.[1] Died June 22, 2004 (aged 13)Washington, D.C. Mother Jeni Stepanek (Mama Peace) […]
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My emotions blurred as I watched my play from ‘The Other Side’
I want to continue writing stories about rare disease survivors Written by Shalom Lim In my previous column, I shared my experience of stepping away from performing in my own play, “The […]
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Life is so much easier with a sense of humor
It’s my way of staying balanced when life tries to tip the scales Written by Patrick Moeschen I’m feeling funny today — humorous, in fact. Brimming with sarcasm and a splash […]
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