From Wikipedia, the free encyclopedia Mattie J.T. Stepanek Stepanek in June 2004 Born Matthew Joseph Thaddeus StepanekJuly 17, 1990Washington, D.C.[1] Died June 22, 2004 (aged 13)Washington, D.C. Mother Jeni Stepanek (Mama Peace) […]
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My willingness to educate others about MD benefits all of us
Written by Patrick Moeschen After my muscular dystrophy diagnosis in August 1985, I thought I could hide my symptoms from my friends at school. When I started seventh grade a few weeks later, […]
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9 Important Facts About Muscular Dystrophy
Muscular dystrophy isn’t a disease that you can catch from someone who has it. It’s a genetic disorder that is inherited from the parents. It is a degenerative disease of […]
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SMA Month – August – What is (Spinal Muscular Atrophy) – SMA
Spinal muscular atrophy (SMA) is a genetic condition that causes worsening muscle weakness. There are five subtypes, which range in severity and age of onset. There’s no cure for SMA, […]
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Myasthenia gravis
From: Wikipedia, the free encyclopedia Myasthenia gravis (MG) is a long-term neuromuscular junction disease that leads to varying degrees of skeletal muscle weakness. The most commonly affected muscles are those of the eyes, face, and swallowing. It can […]
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What to Know About Muscular Dystrophy in Children As a Parent
By Mercedes Thomas, MSN, APRN, CPNP, IBCLC Updated on August 15, 2024 Medically reviewed by Josephine Hessert, DO Muscular dystrophy (MD) is a group of rare genetic diseases that lead […]
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Rare disease
A rare disease is any disease that affects a small percentage of the population. In some parts of the world, the term orphan disease describes a rare disease whose rarity […]
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