MDFSA Blog

Finding ways to stay connected and engaged is essential Written by Patrick Moeschen  – April 6, 2026 As I grow older with limb-girdle muscular dystrophy, one of my biggest challenges isn’t medical; […]

By: Alan Hieber, DMD Contributor Valentine’s Day is upon us.  While I enjoy the sweet taste of chocolate, there is a slightly bitter feeling I have on this holiday. In […]

by Jill Price  Growing up with Charcot-Marie-Tooth disease, I had no idea that other people — including celebrities — might have it. I rarely heard of a celebrity with a disability […]

From Wikipedia, the free encyclopedia This article is about the country artist. For other people named Alan Jackson, see Alan Jackson (disambiguation). Alan Eugene Jackson (born October 17, 1958) is an American country […]

What is Becker muscular dystrophy? Becker muscular dystrophy affects the muscles of the hips, pelvic area, thighs, and shoulders, as well as the heart. Becker muscular dystrophy (BMD) is one of […]

Alfredo Ferrari (nicknamed Alfredino or Dino; 19 January 1932 – 30 June 1956) was an Italian automotive engineer and the first son of automaker Enzo Ferrari. He was diagnosed with […]

My name is Reitumetse Layla Mametja, and I’m a 22 year-old first-year Law student at the University of South Africa with big dreams of making a difference in the world. […]

By Diana Chiyangwa Johannesburg, South Africa: “Mentally it is draining,  watching your child’s health crumble and his lovely body deteriorates, but there’s nothing that can be done. Just coping mechanisms are […]

When life gives you unexpected challenges, you either let them define you—or you rise above them. My son Justin, at just 15 years old, has shown us all what it […]

Alexa Dectis (born March 5, 1993) is an American lawyer and former child actress. She has been a spokesperson for the Muscular Dystrophy Association since age five. Diagnosed with type 2 spinal muscular atrophy as a […]