Landouzy–Dejerine Muscular Dystrophy, also known as Facioscapulohumeral Muscular Dystrophy (FSHD), is a genetic disorder that primarily affects the muscles of the face, shoulders, and upper arms. FSHD often begins in adolescence and can […]
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How I’m thankful every day for friend and family caregivers
Written by Robin Stemple Though I can still function somewhat independently despite my facioscapulohumeral muscular dystrophy (FSHD) and blindness, I acknowledge that I get a lot of support from my family and friends every day. Here I’d […]
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‘Heart-on-a-chip’ project to help researchers study BMD, DMD
Duchenne Parent Project Spain invests in plan to create new lab model Written by Marisa Wexler, MS | May 12, 2026 Duchenne Parent Project Spain is investing €247,000 (just over $290,000 USD) in a […]
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Raul Pizarro
From: Wikipedia, the free encyclopedia One of Raul Pizarro’s art work in 2017 Raul Pizarro Born November 11, 1975 (age 50)Mexicali, Mexico Occupation Visual artist Notable work Greatest Acceptance (2018), Daedalus (2009) Website […]
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Muscular System Facts
Within the realm of human anatomy, the muscular system stands as a testament to the remarkable adaptability and resilience of the human body. While they depend largely on training and protein to […]
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How to combat social isolation while growing older with muscular dystrophy
Finding ways to stay connected and engaged is essential Written by Patrick Moeschen – April 6, 2026 As I grow older with limb-girdle muscular dystrophy, one of my biggest challenges isn’t medical; […]
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Valentine’s Day a Time to Reflect for DMD Patients
By: Alan Hieber, DMD Contributor Valentine’s Day is upon us. While I enjoy the sweet taste of chocolate, there is a slightly bitter feeling I have on this holiday. In […]
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Celebrities with CMT Help to Raise Awareness
by Jill Price Growing up with Charcot-Marie-Tooth disease, I had no idea that other people — including celebrities — might have it. I rarely heard of a celebrity with a disability […]
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Alan Jackson Country Singer (with CMT)
From Wikipedia, the free encyclopedia This article is about the country artist. For other people named Alan Jackson, see Alan Jackson (disambiguation). Alan Eugene Jackson (born October 17, 1958) is an American country […]
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Becker Muscular Dystrophy (BMD)
What is Becker muscular dystrophy? Becker muscular dystrophy affects the muscles of the hips, pelvic area, thighs, and shoulders, as well as the heart. Becker muscular dystrophy (BMD) is one of […]
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