Written by Robin Stemple | July 15, 2026 I can get my wheelchair into the bathroom, but can’t quite use the sink I’ve been forced to make lifestyle changes continuously because of the […]
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New milestones hit in MD trial testing treatment to turn off faulty gene (FSHD)
Early data showing evidence of safety, effectiveness of targeted gene therapy Written by Marisa Horak, MS | July 9, 2026 Two major steps are now complete in an early clinical trial testing a […]
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I now appreciate it when someone says, ‘You have your hands full’
I am overwhelmed, and rarely have enough hours to get everything done Written by Betty Vertin | July 3, 2026 “You have your hands full.” I have heard that said hundreds of times […]
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Arun Bali – Indian Actor (living with Myasthenia Gravis)
– IMDb mini biography by: Shrinivas G. Kulkarni Mini Bio Arun Bali was an Indian actor known for his dignified screen presence and impactful performances across films, television, and theatre. […]
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Myasthenia Gravis
Overview Myasthenia gravis is a condition that happens when communication between nerves and muscles breaks down. This causes muscles to feel weak and get tired quickly. This condition may affect […]
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25 Facts About Landouzy–Dejerine Muscular Dystrophy (also FSHD)
Landouzy–Dejerine Muscular Dystrophy, also known as Facioscapulohumeral Muscular Dystrophy (FSHD), is a genetic disorder that primarily affects the muscles of the face, shoulders, and upper arms. FSHD often begins in adolescence and can […]
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How I’m thankful every day for friend and family caregivers
Written by Robin Stemple Though I can still function somewhat independently despite my facioscapulohumeral muscular dystrophy (FSHD) and blindness, I acknowledge that I get a lot of support from my family and friends every day. Here I’d […]
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Raul Pizarro
From: Wikipedia, the free encyclopedia One of Raul Pizarro’s art work in 2017 Raul Pizarro Born November 11, 1975 (age 50)Mexicali, Mexico Occupation Visual artist Notable work Greatest Acceptance (2018), Daedalus (2009) Website […]
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Muscular System Facts
Within the realm of human anatomy, the muscular system stands as a testament to the remarkable adaptability and resilience of the human body. While they depend largely on training and protein to […]
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How to combat social isolation while growing older with muscular dystrophy
Finding ways to stay connected and engaged is essential Written by Patrick Moeschen – April 6, 2026 As I grow older with limb-girdle muscular dystrophy, one of my biggest challenges isn’t medical; […]
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