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Blog of the Muscular Dystrophy Foundation of South Africa

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Inspiration

Valentine’s Day a Time to Reflect for DMD Patients
Inspiration

Valentine’s Day a Time to Reflect for DMD Patients

By: Alan Hieber, DMD Contributor Valentine’s Day is upon us.  While I enjoy the sweet taste of chocolate, there is a slightly bitter feeling I have on this holiday. In […]

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on Valentine’s Day a Time to Reflect for DMD Patients Sarie Truter February 9, 2026
Celebrities with CMT Help to Raise Awareness
Inspiration

Celebrities with CMT Help to Raise Awareness

by Jill Price  Growing up with Charcot-Marie-Tooth disease, I had no idea that other people — including celebrities — might have it. I rarely heard of a celebrity with a disability […]

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on Celebrities with CMT Help to Raise Awareness Sarie Truter October 22, 2025
Alan Jackson  Country Singer (with CMT)
Inspiration

Alan Jackson Country Singer (with CMT)

From Wikipedia, the free encyclopedia This article is about the country artist. For other people named Alan Jackson, see Alan Jackson (disambiguation). Alan Eugene Jackson (born October 17, 1958) is an American country […]

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on Alan Jackson Country Singer (with CMT) Sarie Truter October 13, 2025
Becker Muscular Dystrophy (BMD)
Inspiration

Becker Muscular Dystrophy (BMD)

What is Becker muscular dystrophy? Becker muscular dystrophy affects the muscles of the hips, pelvic area, thighs, and shoulders, as well as the heart. Becker muscular dystrophy (BMD) is one of […]

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on Becker Muscular Dystrophy (BMD) Sarie Truter October 1, 2025
Alfredo Ferrari 
Inspiration

Alfredo Ferrari 

Alfredo Ferrari (nicknamed Alfredino or Dino; 19 January 1932 – 30 June 1956) was an Italian automotive engineer and the first son of automaker Enzo Ferrari. He was diagnosed with […]

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on Alfredo Ferrari  Sarie Truter September 22, 2025
Reitumetse Layla Mametja
Inspiration

Reitumetse Layla Mametja

My name is Reitumetse Layla Mametja, and I’m a 22 year-old first-year Law student at the University of South Africa with big dreams of making a difference in the world. […]

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on Reitumetse Layla Mametja Sarie Truter September 8, 2025
Story of Mother Raising Child with Duchenne Muscular Dystrophy in South Africa
Inspiration

Story of Mother Raising Child with Duchenne Muscular Dystrophy in South Africa

By Diana Chiyangwa Johannesburg, South Africa: “Mentally it is draining,  watching your child’s health crumble and his lovely body deteriorates, but there’s nothing that can be done. Just coping mechanisms are […]

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on Story of Mother Raising Child with Duchenne Muscular Dystrophy in South Africa Sarie Truter September 5, 2025
Justin’s Journey: Finding Joy and Strength in Every Day (with Duchenne)
Inspiration

Justin’s Journey: Finding Joy and Strength in Every Day (with Duchenne)

When life gives you unexpected challenges, you either let them define you—or you rise above them. My son Justin, at just 15 years old, has shown us all what it […]

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on Justin’s Journey: Finding Joy and Strength in Every Day (with Duchenne) Sarie Truter September 5, 2025
Alexa Dectis   (with type 2 spinal muscular atrophy – SMA)
Inspiration

Alexa Dectis (with type 2 spinal muscular atrophy – SMA)

Alexa Dectis (born March 5, 1993) is an American lawyer and former child actress. She has been a spokesperson for the Muscular Dystrophy Association since age five. Diagnosed with type 2 spinal muscular atrophy as a […]

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on Alexa Dectis (with type 2 spinal muscular atrophy – SMA) Sarie Truter August 25, 2025
Jane Campbell, Baroness Campbell of Surbiton – with spinal muscular atrophy (SMA)
Inspiration

Jane Campbell, Baroness Campbell of Surbiton – with spinal muscular atrophy (SMA)

Jane Susan Campbell, Baroness Campbell of Surbiton, DBE (born 19 April 1959), is a British disability rights campaigner and a life peer in the House of Lords. She was Commissioner of the Equality and Human Rights […]

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on Jane Campbell, Baroness Campbell of Surbiton – with spinal muscular atrophy (SMA) Sarie Truter August 21, 2025

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