What is oculopharyngeal muscular dystrophy (OPMD)? OPMD is a rare, slowly progressive myopathy that is characterized by weakness of the eyelids (ocular) and throat (pharyngeal) muscles. Additionally, OPMD can be […]
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Qatar teen with muscular dystrophy breaks down stereotypes, one at a time
by Victoria Scott Nawaal Akram aspires to be the role model she looked for – but didn’t find – as she was growing up in Qatar. The 17-year-old Pakistani expat was diagnosed […]
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Valentine’s Day a Time to Reflect for DMD Patients
By: Alan Hieber, DMD Contributor Valentine’s Day is upon us. While I enjoy the sweet taste of chocolate, there is a slightly bitter feeling I have on this holiday. In […]
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People have told me I’m a strong person, but what is strength?
Written by Patrick Moeschen | 19 January 2026 “I think true strength is persevering through events that are beyond our control” I’d like to share my thoughts on what the word “strength” means. […]
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