Alexa Dectis (born March 5, 1993) is an American lawyer and former child actress. She has been a spokesperson for the Muscular Dystrophy Association since age five. Diagnosed with type 2 spinal muscular atrophy as a […]
Read More
Jane Campbell, Baroness Campbell of Surbiton – with spinal muscular atrophy (SMA)
Jane Susan Campbell, Baroness Campbell of Surbiton, DBE (born 19 April 1959), is a British disability rights campaigner and a life peer in the House of Lords. She was Commissioner of the Equality and Human Rights […]
Read More
Yuliya Samoylova (Russian singer) – with spinal muscular atrophy (SMA)
Julia Olegovna Samoilova (Russian: Ю́лия Оле́говна Само́йлова, IPA: [ˈjʉlʲɪjə ɐˈlʲeɡəvnə sɐˈmojləvə]; born 7 April 1989), sometimes credited as Yulia Samoilova or Julia Samoylova, is a Russian singer-songwriter. In early 2017, she was selected to represent Russia in the 2017 edition of the Eurovision Song […]
Read More
Kim Tserkezie – with spinal muscular atrophy (SMA)
Kim Tserkezie (born 30 July 1973) is a British actress, director, producer, and television presenter. She is best known for portraying the role of Penny Pocket in the children’s series Balamory and as a presenter […]
Read More
What You Should Know About Spinal Muscular Atrophy (SMA)
MONDAY, Aug. 11, 2025 (HealthDay News) — Spinal muscular atrophy (SMA) is a genetic neuromuscular disease affecting specialized nerve cells that control voluntary muscle movement, according to the Muscular Dystrophy Association (MDA). […]
Read More
SMA Month – August – What is (Spinal Muscular Atrophy) – SMA
Spinal muscular atrophy (SMA) is a genetic condition that causes worsening muscle weakness. There are five subtypes, which range in severity and age of onset. There’s no cure for SMA, […]
Read More