Life is so much easier with a sense of humor
It’s my way of staying balanced when life tries to tip the scales Written by Patrick Moeschen I’m feeling funny today — humorous, in fact. Brimming... Read more.
Oculopharyngeal Muscular Dystrophy (OPMD)
What is oculopharyngeal muscular dystrophy (OPMD)? OPMD is a rare, slowly progressive myopathy that is characterized by weakness of the eyelids (ocular) and throat... Read more.
Qatar teen with muscular dystrophy breaks down stereotypes, one at a time
by Victoria Scott Nawaal Akram aspires to be the role model she looked for – but didn’t find – as she was growing up in Qatar. The 17-year-old Pakistani... Read more.
Valentine’s Day a Time to Reflect for DMD Patients
By: Alan Hieber, DMD Contributor Valentine’s Day is upon us. While I enjoy the sweet taste of chocolate, there is a slightly bitter feeling I have on this... Read more.
People have told me I’m a strong person, but what is strength?
Written by Patrick Moeschen | 19 January 2026 “I think true strength is persevering through events that are beyond our control” I’d like to share... Read more.
Sexuality
(MUSCULAR DYSTROPHY – by News Today) Muscular dystrophy is a group of genetic conditions characterized by muscle wasting which results in progressive... Read more.
Understanding People with Disabilities
By: Sarie Bouwer People with disabilities are an important part of our diverse society. They bring unique perspectives, talents, and experiences that enrich our... Read more.
Muscular Dystrophy in Children & Teens: Information for Families (Part 3)
Strength Isn’t Just Physical By: Abby Svoboda High school is tough. There’s pressure to figure out your future and fit in. As I personally learned, most... Read more.
Muscular Dystrophy in Children & Teens: Information for Families (Part 2)
Building a Community of Support By: Stephanie & Jon Betts Our son, Henry James, came into the world at 37 weeks, just under 6 pounds, with a distinctly weak,... Read more.
Muscular Dystrophy in Children & Teens: Information for Families (Part 1)
By: Jenna Klotz, MD, MS, FAAP Muscular dystrophies are genetic muscle disorders which cause progressive muscle weakness. There are more than 40 different types.... Read more.