The Muscular Dystrophy Foundation of South Africa is offering all persons diagnosed with spinal muscular atrophy (SMA), limb-girdle muscular dystrophy (LGMD) and facioscapulohumeral dystrophy (FSHD) the opportunity to get a free genetic test that will confirm their muscular dystrophy (MD) diagnosis.

We know it’s never pleasant going through more medical stuff … but there are three great reasons why you should seriously consider this offer.

  • Knowledge is power
    The more we know about our conditions, the better equipped we are to manage them. Genetic testing is
    detailed and accurate and clears up diagnosis confusion – including things you may not even know about.
  • Genetic tests are essential to access new genetic treatments
    New genetic treatments are starting to emerge for different MDs. A genetic test is the starting point to accessing new treatments. Nothing can happen without it. The sooner you get one done, the better placed
    you will be to access treatments if and when they become available for your condition.
  • Getting tested helps our whole community
    South Africa struggles a lot to diagnose people with MD correctly, and our lack of MD diagnostic data is holding all of us back. The more detail we have about who has MD, the better positioned our country will be to help people living with MD to access the treatments that are already being used in many other parts of the world. Simply put, when you get your genetic test, you’re helping me. And when I get my test, I’m helping you. The more tests we get done, the more power we have as a community.

Contact us!
Please discuss this offer seriously with your family and loved ones. If you would like to take advantage of the free testing opportunity, contact Gerda Brown. Click here to contact the MDF.

Author

  • I graduated with a B.A. (Hons.) degree in Social Work in 1991. I love being a social worker because I feel like my work is meaningful and fulfilling. One of the best ways to feel like your work matters is to make a difference in the lives of others, and being a social worker allows you to do just that.

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