Written by Patrick Moeschen After my muscular dystrophy diagnosis in August 1985, I thought I could hide my symptoms from my friends at school. When I started seventh grade a few weeks later, […]
Read More
Life is so much easier with a sense of humor
It’s my way of staying balanced when life tries to tip the scales Written by Patrick Moeschen I’m feeling funny today — humorous, in fact. Brimming with sarcasm and a splash […]
Read More
Oculopharyngeal Muscular Dystrophy (OPMD)
What is oculopharyngeal muscular dystrophy (OPMD)? OPMD is a rare, slowly progressive myopathy that is characterized by weakness of the eyelids (ocular) and throat (pharyngeal) muscles. Additionally, OPMD can be […]
Read More
Qatar teen with muscular dystrophy breaks down stereotypes, one at a time
by Victoria Scott Nawaal Akram aspires to be the role model she looked for – but didn’t find – as she was growing up in Qatar. The 17-year-old Pakistani expat was diagnosed […]
Read More
Valentine’s Day a Time to Reflect for DMD Patients
By: Alan Hieber, DMD Contributor Valentine’s Day is upon us. While I enjoy the sweet taste of chocolate, there is a slightly bitter feeling I have on this holiday. In […]
Read More
People have told me I’m a strong person, but what is strength?
Written by Patrick Moeschen | 19 January 2026 “I think true strength is persevering through events that are beyond our control” I’d like to share my thoughts on what the word “strength” means. […]
Read More
Understanding People with Disabilities
By: Sarie Bouwer People with disabilities are an important part of our diverse society. They bring unique perspectives, talents, and experiences that enrich our communities. Disabilities can be physical, sensory, […]
Read More
Muscular Dystrophy in Children & Teens: Information for Families (Part 3)
Strength Isn’t Just Physical By: Abby Svoboda High school is tough. There’s pressure to figure out your future and fit in. As I personally learned, most people feel self-conscious. When […]
Read More
Muscular Dystrophy in Children & Teens: Information for Families (Part 2)
Building a Community of Support By: Stephanie & Jon Betts Our son, Henry James, came into the world at 37 weeks, just under 6 pounds, with a distinctly weak, chirping […]
Read More