What is limb-girdle muscular dystrophy?A diagram of which muscles are affected in LGMD. Limb-girdle muscular dystrophy (LGMD) is a diverse group of disorders with many subtypes categorized by disease gene […]
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Friedreich’s Ataxia
From Wikipedia, the free encyclopedia Friedreich’s ataxia (FRDA) is a rare, inherited, autosomal recessive neurodegenerative disorder that primarily affects the nervous system, causing progressive damage to the spinal cord, peripheral nerves, and cerebellum, leading to impaired muscle coordination […]
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Alfredo Ferrari
Alfredo Ferrari (nicknamed Alfredino or Dino; 19 January 1932 – 30 June 1956) was an Italian automotive engineer and the first son of automaker Enzo Ferrari. He was diagnosed with […]
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9 Important Facts About Muscular Dystrophy
Muscular dystrophy isn’t a disease that you can catch from someone who has it. It’s a genetic disorder that is inherited from the parents. It is a degenerative disease of […]
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Reitumetse Layla Mametja
My name is Reitumetse Layla Mametja, and I’m a 22 year-old first-year Law student at the University of South Africa with big dreams of making a difference in the world. […]
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Story of Mother Raising Child with Duchenne Muscular Dystrophy in South Africa
By Diana Chiyangwa Johannesburg, South Africa: “Mentally it is draining, watching your child’s health crumble and his lovely body deteriorates, but there’s nothing that can be done. Just coping mechanisms are […]
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Justin’s Journey: Finding Joy and Strength in Every Day (with Duchenne)
When life gives you unexpected challenges, you either let them define you—or you rise above them. My son Justin, at just 15 years old, has shown us all what it […]
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What is Muscular Dystrophy (September is International Muscular Dystrophy month)
Muscular dystrophy (MD) is an ‘umbrella’ term that refers to a wider group of more than 75 genetically inherited neuromuscular conditions which cause progressive deterioration of muscle strength and function. […]
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Alexa Dectis (with type 2 spinal muscular atrophy – SMA)
Alexa Dectis (born March 5, 1993) is an American lawyer and former child actress. She has been a spokesperson for the Muscular Dystrophy Association since age five. Diagnosed with type 2 spinal muscular atrophy as a […]
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Jane Campbell, Baroness Campbell of Surbiton – with spinal muscular atrophy (SMA)
Jane Susan Campbell, Baroness Campbell of Surbiton, DBE (born 19 April 1959), is a British disability rights campaigner and a life peer in the House of Lords. She was Commissioner of the Equality and Human Rights […]
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