I want to continue writing stories about rare disease survivors Written by Shalom Lim In my previous column, I shared my experience of stepping away from performing in my own play, “The […]
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My willingness to educate others about MD benefits all of us
Written by Patrick Moeschen After my muscular dystrophy diagnosis in August 1985, I thought I could hide my symptoms from my friends at school. When I started seventh grade a few weeks later, […]
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Life is so much easier with a sense of humor
It’s my way of staying balanced when life tries to tip the scales Written by Patrick Moeschen I’m feeling funny today — humorous, in fact. Brimming with sarcasm and a splash […]
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Oculopharyngeal Muscular Dystrophy (OPMD)
What is oculopharyngeal muscular dystrophy (OPMD)? OPMD is a rare, slowly progressive myopathy that is characterized by weakness of the eyelids (ocular) and throat (pharyngeal) muscles. Additionally, OPMD can be […]
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Qatar teen with muscular dystrophy breaks down stereotypes, one at a time
by Victoria Scott Nawaal Akram aspires to be the role model she looked for – but didn’t find – as she was growing up in Qatar. The 17-year-old Pakistani expat was diagnosed […]
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Valentine’s Day a Time to Reflect for DMD Patients
By: Alan Hieber, DMD Contributor Valentine’s Day is upon us. While I enjoy the sweet taste of chocolate, there is a slightly bitter feeling I have on this holiday. In […]
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People have told me I’m a strong person, but what is strength?
Written by Patrick Moeschen | 19 January 2026 “I think true strength is persevering through events that are beyond our control” I’d like to share my thoughts on what the word “strength” means. […]
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Understanding People with Disabilities
By: Sarie Bouwer People with disabilities are an important part of our diverse society. They bring unique perspectives, talents, and experiences that enrich our communities. Disabilities can be physical, sensory, […]
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Muscular Dystrophy in Children & Teens: Information for Families (Part 3)
Strength Isn’t Just Physical By: Abby Svoboda High school is tough. There’s pressure to figure out your future and fit in. As I personally learned, most people feel self-conscious. When […]
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