My name is Reitumetse Layla Mametja, and I’m a 22 year-old first-year Law student at the University of South Africa with big dreams of making a difference in the world. […]
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Story of Mother Raising Child with Duchenne Muscular Dystrophy in South Africa
By Diana Chiyangwa Johannesburg, South Africa: “Mentally it is draining, watching your child’s health crumble and his lovely body deteriorates, but there’s nothing that can be done. Just coping mechanisms are […]
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Justin’s Journey: Finding Joy and Strength in Every Day (with Duchenne)
When life gives you unexpected challenges, you either let them define you—or you rise above them. My son Justin, at just 15 years old, has shown us all what it […]
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What is Muscular Dystrophy (September is International Muscular Dystrophy month)
Muscular dystrophy (MD) is an ‘umbrella’ term that refers to a wider group of more than 75 genetically inherited neuromuscular conditions which cause progressive deterioration of muscle strength and function. […]
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Alexa Dectis (with type 2 spinal muscular atrophy – SMA)
Alexa Dectis (born March 5, 1993) is an American lawyer and former child actress. She has been a spokesperson for the Muscular Dystrophy Association since age five. Diagnosed with type 2 spinal muscular atrophy as a […]
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Jane Campbell, Baroness Campbell of Surbiton – with spinal muscular atrophy (SMA)
Jane Susan Campbell, Baroness Campbell of Surbiton, DBE (born 19 April 1959), is a British disability rights campaigner and a life peer in the House of Lords. She was Commissioner of the Equality and Human Rights […]
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Yuliya Samoylova (Russian singer) – with spinal muscular atrophy (SMA)
Julia Olegovna Samoilova (Russian: Ю́лия Оле́говна Само́йлова, IPA: [ˈjʉlʲɪjə ɐˈlʲeɡəvnə sɐˈmojləvə]; born 7 April 1989), sometimes credited as Yulia Samoilova or Julia Samoylova, is a Russian singer-songwriter. In early 2017, she was selected to represent Russia in the 2017 edition of the Eurovision Song […]
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Kim Tserkezie – with spinal muscular atrophy (SMA)
Kim Tserkezie (born 30 July 1973) is a British actress, director, producer, and television presenter. She is best known for portraying the role of Penny Pocket in the children’s series Balamory and as a presenter […]
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What You Should Know About Spinal Muscular Atrophy (SMA)
MONDAY, Aug. 11, 2025 (HealthDay News) — Spinal muscular atrophy (SMA) is a genetic neuromuscular disease affecting specialized nerve cells that control voluntary muscle movement, according to the Muscular Dystrophy Association (MDA). […]
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SMA Month – August – What is (Spinal Muscular Atrophy) – SMA
Spinal muscular atrophy (SMA) is a genetic condition that causes worsening muscle weakness. There are five subtypes, which range in severity and age of onset. There’s no cure for SMA, […]
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